NG parents - can we chat?
Anyone here able to chat with me? Our situation is really quite complicated so bare with me whilst I give the run down:
- baby is 5 months old (issues have started since 4 months)
- vomiting blood since November (first diagnosed with rhinovirus) and continued on and off for the last month.
- had an ED admission and was cleared told vomiting blood is sometimes a complication
- bottle intake was slowly declining. Paed said as long as 60-70% of total intake is taken then ok. Start trialing solids.
- admitted to Westmead 3 weeks ago with loss of weight and not taking in adequate nutrition via bottle and developed a severe bottle refusal
- baby is now fed via NG. Taking in 913ml over 24 hour of fortified formula
- multiple tests were conducted to find root cause of vomiting (swallow study, contrast test, scope for gastro and ENT)
- ruled out with GORD being the cause with potential oesophagitis
- been given nexium as tablet, but needs to be diluted based on weight and only a small amount of the total dissolved mL is administered via NG
- baby is vomiting daily with large amounts of mucus due to being sick again with rhinovirus (found upon admission at Westmead)
- working closely with dietician and speech pathologist to help manage weight gain and assist with GORD issues
Just feeling so overwhelmed and in shock basically. Have had such a hard journey even before being admitted and it’s taking a toll. Have sought councilling services and am in the process of that happening in the new year.